Discussing rare diseases is difficult at any age, but the topic can be particularly hard to grasp for kids. A recent FiercePharma article discussed a new series of children’s books intended to help families talk about rare diseases with kids. The concept is the brainchild of Rachel Pegram, a woman living with generalized myasthenia gravis (gMG), a rare autoimmune disease that causes weakness in muscles. She wanted an easier way to explain her condition with her 3 year old daughter.
Alexion Releases Children’s Books to Help Kids Understand Rare Diseases
The books are intended to create awareness about diseases, and help children understand and cope with them.
Nov 4, 2021
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